Living with Bob (Dysautonomia): Dysautonomia. Invisible Illness My Arse!

Hi everyone I know it's been a long time and I've been a reallybad blogger. The truth will be uncovered but in short I'm gonna have the time and have had the time to think about my blog writing and just healing in general. I wanted to share the blog below living with Bob because this is a condition I have been wrestling with and trying to understand myself and find doctors are willing to work with it. And this particular blog helped me out this week and has been on my mind and I've actually read it over again I don't know the blog writer but I do know that it is well written and has expressed my life in the last few years especially as I think this condition has progressed.Especially, now that I broke my left wrist and will be in a cast for the next few weeks and now that I'm starting to feel better I want to start posting again and get on a regular schedule and also learn more about this condition. So to begin I wanted to share this blog and to ask you to look forward to my next article because I think we all need to learn more about dysautonomia and to hear Yaya speak till next time enjoy your life

Living with Bob (Dysautonomia): Dysautonomia. Invisible Illness My Arse!: Dysautonomia? Did you make that up? What the hell? Is that a species of dinosaur? A Pokemon character perhaps? Say what? Has anyone who ha...

Remembering...

This month is a month of anniversaries. Many people think that when you talk about anniversaries, they have to be good things, but I tend to believe that even deaths, losses, diagnosis, all those things are anniversaries. Life is short. Life is meant to teach us lessons that we have to be willing to learn.  This morning's devotional was about the man who is at the pool  complaining because nobody was willing to pick him up and put them into the pool when it was stirred, but Jesus sternly tells him to take up his mat and walk. I think that's the hard part about all of the things that happen to us.  I don't think that picking up our mat is a one time occurrence I think that we revisit that in many ways as we mature on this journey called life. We have to just pick up our issues and wounds; especially during those anniversaries and find our way to do better.  I think we have to just live life; we have to learn to over come and learn from the past.  I strongly believe that we don't have to be victims to whatever has occurred in our narrative..  I can overcome and take the invitation that Christ has made us.  For we have this treasure in jars in clay and God is with us....

My life is a gift!  
So, is yours so enjoy it, one step at a time! 

God is at work even in me...

This passage speaks to the fact that even in my disability and limitations God is at work.  I think once I stopped focusing on me and what I could not do is when I saw that God is greater. So, I  put my eyes on God because God is my Hope & my Salvation.

http://bible.us/2Cor12.5.MSG You've forced me to talk this way, and I do it against my better judgment. But now that we're at it, I may as well bring up the matter of visions and revelations that God gave me. For instance, I know a man who, fourteen years ago, was seized by Christ and swept in ecstasy to the heights of heaven. I really don't know if this took place in the body or out of it; only God knows. I also know that this man was hijacked into paradise—again, whether in or out of the body, I don't know; God knows. There he heard the unspeakable spoken, but was forbidden to tell what he heard. This is the man I want to talk about. But about myself, I'm not saying another word apart from the humiliations. If I had a mind to brag a little, I could probably do it without looking ridiculous, and I'd still be speaking plain truth all the way. But I'll spare you. I don't want anyone imagining me as anything other than the fool you'd encounter if you saw me on the street or heard me talk. Because of the extravagance of those revelations, and so I wouldn't get a big head, I was given the gift of a handicap to keep me in constant touch with my limitations. Satan's angel did his best to get me down; what he in fact did was push me to my knees. No danger then of walking around high and mighty! At first I didn't think of it as a gift, and begged God to remove it. Three times I did that, and then he told me, My grace is enough; it's all you need. My strength comes into its own in your weakness. Once I heard that, I was glad to let it happen. I quit focusing on the handicap and began appreciating the gift. It was a case of Christ's strength moving in on my weakness. Now I take limitations in stride, and with good cheer, these limitations that cut me down to size—abuse, accidents, opposition, bad breaks. I just let Christ take over! And so the weaker I get, the stronger I become.

Grief sucks

If your dealing with any kind of grief I encourage you to look into www.griefshare.org
Our society does not prepare us for death nor are we comfortable with the tension....

Take a moment breathe............
The sun will rise....
We are not alone...
Take care of yourself...
The Lord is my Hope and my salvation
Taking it moment by moment and that is okay....


Yana Speaks:

'via Blog this'

What will others say about you when you are gone?

Legacy what mark will you leave on this earth.  What will others say about you when you are gone?

I have been thinking about this for years because at very young age I have been familiar with death.  But, it was the news I got in early April that sacred me into the awareness that life is short.  The test came back clean and they were able to remove all pre-cancer cells for now...As the doctor told me how unusual this was that I had such symptoms and all I could do was cry. I cried tears of joy.  Shoot I am only 36 years old!  Then add losing my grandmother; she was my home.  I think of couples trying to grapple with there young child who has cancer, or the parent who is mourning the reality that they will never see there child grow up.  So, at the moment I am annoyed at Cancer and the lives it takes and the families it affects but it has me thinking.  What kind of life am I living?  Am I enjoying life?  Or I am making myself so busy I have no friends, family or fun?  Do I need to wait for death to come knocking to tell those around me I love them?  I feel like I too am living on borrowed time and for me my time is in the Creators Care and I pray he teach me to live life to the fullest!  That I be different in my actions of Love and be a person of Love; leaving that mark everywhere I go....

 Nichole Nordeman 

LegacyI don't mind if you've got something nice to say about me And I enjoy an accolade like the rest You could take my picture and hang it in a gallery Of all who's who and so-n-so's that used to be the best At such'n'such ... it wouldn't matter muchI won't lie, it feels alright to see your name in lights We all need an 'Atta boy' or 'Atta girl' But in the end I'd like to hang my hat on more besides The temporary trappings of this worldI want to leave a legacy How will they remember me? Did I choose to love? Did I point to You enough To make a mark on things? I want to leave an offering A child of mercy and grace whoblessed your name unapologetically And leave that kind of legacyI don't have to look too far or too long awhile To make a lengthly list of all that I enjoy It's an accumulating trinket and a treasure pile Where moth and rust, thieves and such will soon enough destroyNot well traveled, not well read, not well-to-do or well bred Just want to hear instead, "Well Done" good and faithful one...