Friday, July 19, 2013

Dysautonomia pushed me down the stairs!


Dysautonomia pushed me down the stairs!
 
No! For realz!!!!!
I am serious I had a fainting spell fell down my stairs and broke my left wrist apparently broke it pretty bad but it was a clean break. 
Like that makes the pain better!?! What did I worry about, in the moment? 
I worried about my grandmother's bracelets seriously only someone that has worked in an ER can understand why I made sure to pull them off before being rushed to the hospital. 
So now with the boot on my foot and a cast on my hand and ready to take on dysautonomia!

I believe in being private.! You say yeah right! Your writing on a blog and sharing your information on social media. But I'm sharing what I choose to share. There's a level that I've seen in my life of being private that is so on healthy. To the point where people even die alone without anyone ever knowing anything about. I don't want to be one of those people. I want to try to find the balance. I have no idea what that looks like so if you're expecting final conclusions it will not be here. ( check out www.ted.com because that is an awesome place for final talks.) But when something as serious as an autonomic nervous system dysfunction comes to visit and doesn't leave you alone! 

Or better yet the doctors make you feel so helpless you want to hit your head against the wall!
My theory is you have to talk about it and some of it might be with the therapist, over coffee, whatever but for me there's a part of it that I want to share.  Because, if in my sharing I can help others and create more awareness and even more so glorify God. Then my new mission in life will include telling my story of Dysautonomia.  Further understanding living with a chronic illness.

Wednesday, July 17, 2013

Love and marriage takes work....

I've been debating this post for a while but really feel that I need to share and since everybody might be excited to get married now let me say that marriage is so much more than just the physical stuff.Newsflash! What we see in movies is not reality.



 I share this because the last few months have been really tough for me and this last straw of breaking my wrist is no joke. I'd be wrong if I didn't give props to my husband for being there for me on all sides of this! You know I love you even when we fight...So for all of you that are still debating or are looking for the right person let me share this NOT because I have it all figured out but because when the s--- hits the fan you want somebody to have your back. We really need to know ourselves and to know the one in whom we believe.
And the person you should be with is more than just a paycheck ...

They are more than just the car they drive but is willing to be with you and the good and in the bad and ugly stuff. To me it's no surprise that my person is willing to be by my side in whatever I need and I pray I never take it for granted intentional. (Yes the person reference is from Gray's anatomy) I know that for our story there have been many bumps on the road but he's got my back and is willing not just to work which apparently seems to be important for bills...But he is willing to put on my sneakers, do my hair, take me to the doctor and take care of the house. I am married to a real man and I can only pray that if I ever have to help him the way he's helping me that he feels support as I am supported right now.

Flowers are nice but they die...Someone that is willing to be with you in all kinds of storms and not run away that lasts forever. Diamond rings and all that blings is really nice but it's not love if there is no love when your sick. Well those are my two cents from this hot mess. Love is a decision...
I am Glad that I chose my church sweetheart! Even when we drive each other crazy we do it our way!
After all we are imperfect at least it were honest about it. So go talk to your mate and find out a way that you both can make your home a little better. Not everybody's home looks the same way so only the two of you can measure your happiness in the way that makes the most. For me I can't imagine doing this without my faith in God but again my home is not your home. Everyone deserves to be loved especially by the one they love!
Genesis 2:22-24
Then the LORD God made a woman from the rib he had taken out of the man, and he brought her to the man.  The man said, "This is now bone of my bones and flesh of my flesh; she shall be called 'woman, ' for she was taken out of man."  For this reason a man will leave his father and mother and be united to his wife, and they will become one flesh.
This blog is dedicated to my person! Thank you for being part of my life!. I love you and wish you a happy birthday.

JAY

http://www.ndrf.org/ans.html